Tag: Patient Advocates

ILC overlooked in Breast Cancer Clinical Trials

Invasive Lobular Breast Cancer, an overlooked Subtype in Clinical Trials was one of the Poster Presentations at ESMO Breast Cancer Conference in Berlin last week. Lobular Ireland are very proud to be co authors on this piece of work led by Karen Van Baelen as Researcher from the European Lobular Breast Cancer Consortium from Leuven.…

Day 24 #LivingWithLobular

As we enter week 4 of October 2022 and #BreastCancerAwareness month, we’d like to thank everyone who is working so hard to bring attention to Invasive Lobular Breast Cancer. Kirsty has been a member of Lobular Ireland since 2019 and is passionate about raising awareness of ILC, especially across Ireland. We’re incredibly lucky to have…

Day 23 #LivingWithLobular

This year Lobular Ireland agreed to post ‘Our Stories – #LivingWithLobular’ One Story each day throughout October to raise awareness of our Subtype of Breast Cancer While Ductal Carcinoma accounts for approx 80% of all Breast Cancers and is the most common NST (No Special Type) Lobular Breast Cancer is the most common special histological…

Invasive Lobular Breast Cancer requires different Clinical Management to Invasive Ductal Cancer

This week The Royal College of Surgeons hosted The Breast Cancer Ireland Dublin Steroid Cancer Conference. This prestigious event featuring presentations from world leaders in Oncology drew lots of media attention and was extremely well attended. On Thursday 20th October a Lobular Breast Cancer Session was introduced and moderated by Professor William Gallagher, deputy director…

Day 17 #LivingWithLobular

Lobular Ireland set themselves a task this October to raise awareness of Invasive Lobular Cancer in Ireland. In doing so they will share Patient Stories and insights as to how Lobular Breast Cancer is different. Most women in our group agree that Lobular is #NotAlwaysALump, almost all agree that it didn’t show up on their…

Day 16 #LivingWithLobular

My name is Caroline and I was diagnosed with Invasive Lobular breast cancer in April 2021 at the age of 53. My story is a little different as I found a lump and it was a big one. I was in bed, reading my text messages and the phone fell on my chest and I…

Day 15 #LivingWithLobular

Lorraine is another young woman and a member of our Lobular Ireland Group. Lorraine readily agreed to share a little about her Lobular Breast Cancer story to help educate and enhance an awareness around this unique Subtype of Breast Cancer. On 28th April 2021 aged 37, I was diagnosed with Invasive Lobular Breast Cancer.  I…

International ELBCC ILC Symposium 2022

The International ILC Symposium 2022 was hosted in Utrecht the Nederlands this week, June 2022. The European Lobular Breast Cancer Consortium http://www.elbcc.org is supported by European Cost Action #CA19138 #Lobsterpot bringing together Scientific Experts from all ILC Breast Cancer disciplines, Clinical, Surgical, Oncology, Pathology, Histopathology, who collaborate and share their knowledge to promote further partnerships…

Global Collaboration around Lobular Breast Cancer

Access to full article ✅ HERE How Researchers, Clinicians and Patient Advocates Can Accelerate Lobular Breast Cancer Research Lobular Ireland and founder Siobhán Freeney are extremely honoured to be named co author on this Paper and will continue to raise awareness and education around Invasive Lobular Breast Cancer in Ireland and across Europe. Simple Summary…