Tag: LobularResearch

Day 28 #LivingWithLobular

I reached out to Colleen having read a post from her on a US Lobular Breast Cancer FB page. I know that she is a fantastic Advocate for ILC and I felt that many of us could learn from her experience. I’m very grateful to Colleen for agreeing to help Lobular Ireland raise awareness and…

Day 19 #LivingWithLobular

I’m Jean Anne. I live in Galway and was diagnosed with lobular breast cancer at age 52 following my second screening mammogram with Breastcheck. After initial lumpectomy surgery I was found to have multifocal ILC which required 2 further surgeries – four smaller tumours were discovered on pathology after surgery (undetected on mammogram and pre…

Day 17 #LivingWithLobular

Lobular Ireland set themselves a task this October to raise awareness of Invasive Lobular Cancer in Ireland. In doing so they will share Patient Stories and insights as to how Lobular Breast Cancer is different. Most women in our group agree that Lobular is #NotAlwaysALump, almost all agree that it didn’t show up on their…

Survey on Research Goals and Priorities for Lobular

You are invited to participate in a survey focused on Invasive Lobular Breast Cancer (ILC)  which was developed by an international group of researchers, clinicians and breast cancer advocates. The survey was approved by the University of Pittsburgh IRB.  It will take approximately 10 mins to complete.  If you can please complete the survey no later April 30, 2022. Follow…

All About Lobular in Utrecht June 20 – 22

The City of Utrecht and The European Lobular Breast Cancer Consortium will play host to the 2022 International ELBCC Lobsterpot Lobular Breast Cancer Symposium and Summerschool Full Agenda can be found at this link https://ilcsymposium2022.com/ There will be a two hour Patient Advocate led Session on Tuesday 21st where we look forward to meeting, many…

The Lobmob Effect

Leigh Pate founded The LBCA – Lobular Breast Cancer Alliance along with Professor Steffi Oesterrich, Lori Petitti, Diane Mapes #Lobmob It’s a real success story for Lobular Breast Cancer and an extraordinary example of what a group of ordinary women achieved through collaborative efforts with ILC Researchers and a real, shared, passionate desire for change.Thank…

Lobular Up Front

FOCUS ON LOBULAR BREAST CANCER Front Cover News thanks to Collaborative Research from The European Lobular Breast Cancer Consortium http://www.elbcc.org Congratulations from #ILC Patient Community Invasive lobular carcinoma (ILC) is the most common ‘‘special type’’ breast cancer (BC) worldwide. ILC often has larger tumors on presentation and a unique pattern of metastatic spread compared to…

Global Collaboration around Lobular Breast Cancer

Access to full article ✅ HERE How Researchers, Clinicians and Patient Advocates Can Accelerate Lobular Breast Cancer Research Lobular Ireland and founder Siobhán Freeney are extremely honoured to be named co author on this Paper and will continue to raise awareness and education around Invasive Lobular Breast Cancer in Ireland and across Europe. Simple Summary…