Tag: Lobular Ireland

Survey on Research Goals and Priorities for Lobular

You are invited to participate in a survey focused on Invasive Lobular Breast Cancer (ILC)  which was developed by an international group of researchers, clinicians and breast cancer advocates. The survey was approved by the University of Pittsburgh IRB.  It will take approximately 10 mins to complete.  If you can please complete the survey no later April 30, 2022. Follow…

All About Lobular in Utrecht June 20 – 22

The City of Utrecht and The European Lobular Breast Cancer Consortium will play host to the 2022 International ELBCC Lobsterpot Lobular Breast Cancer Symposium and Summerschool Full Agenda can be found at this link https://ilcsymposium2022.com/ There will be a two hour Patient Advocate led Session on Tuesday 21st where we look forward to meeting, many…

The Lobmob Effect

Leigh Pate founded The LBCA – Lobular Breast Cancer Alliance along with Professor Steffi Oesterrich, Lori Petitti, Diane Mapes #Lobmob It’s a real success story for Lobular Breast Cancer and an extraordinary example of what a group of ordinary women achieved through collaborative efforts with ILC Researchers and a real, shared, passionate desire for change.Thank…

Lobular Translation across Europe

When I was Diagnosed with Lobular Breast Cancer, 6 years ago there was NO Lobular Specific information available to patients. That is now changed, Lobular Ireland and I are so proud to be a very small part in making this change. Not all #BreastCancer is the same, it’s so important to know this. Signs and…

Mid Summer Up Date #LivingWithLobular

I just want to highlight some of the ILC Advocacy work that I’ve been involved closely with this year so far as Patient Advocate with http://www.Lobularireland.com and http://www.elbcc.org A real highlight has been our association with the recently published paper How Researchers, Clinicians and Patient Advocates Can Accelerate Lobular Breast Cancer As founder member of Lobular Ireland…

International Lobular Breast Cancer Symposium 24th and 25th June 2021

Researchers, Clinicians, Patients, Patient Advocates, Scientists – Registration is open for #Lobular2021 For Registration and Program of Events http://ilcsymposium.com/ This year’s ILC Symposium has a stellar program of events for anyone interested in learning more about Lobular Breast Cancer. Register now for the #Lobular2021 Symposium 24th – 25th June Lobular Ireland are delighted to be…