ELBCC (European Lobular Breast Cancer Consortium) have been working away in the background with patent advocates and experts to put together an informative and timely Patient Information Leaflet on all things Lobular. It’s a nifty few pages that summarise what you need to know about how Lobular differentiates, outlines the common treatment strategies and explains…
Check out this video of Komen-funded researchers and patient advocates around the world to discuss the cutting edge projects they’re working on, but most importantly emphasising how key collaboration is. Darren O’Connor talks specifically about lobular research. The interview is available to view here
Ireland is among the 21 countries in the LOBSTERPOT in this exciting development to improve treatment and outcomes for patients diagnosed with ILC, and importantly acknowledgement that ILC needs specific treatment. European Lobular Breast Cancer Consortium (ELBCC) with researchers based in UMC Utrecht, KU Leuven, and with 21 countries participating in this four year project, with…
As part of Cancer Week Ireland 2020, the Irish Cancer Society held a number of very interesting discussions. Here’s a look back at one with a leading Irish Oncologist and Investigator with Clinical Trials Ireland. We are extremely lucky to have Professor Cathy Kelly as our Clinical Advisor for Lobular Ireland Prof Cathy Kelly is…
Over on the Lobular Breast Cancer Alliance page, founder Leigh Pate presents the first in a series of Advocacy chats. While this is a US based group, the information is pertinent to all who have an interest in educating others about invasive lobular carcinoma (ILC) and advocate for ILC research. It’s a webinar recording lasting…
If you missed this webinar at the time, fear not, the recorded version of this webinar from Prof. Steffi Oesterreich is available to view now. A very informative talk. Tune in! Link here
LBCA are a charity based organisation in the US dedicated to Invasive Lobular Breast Cancer (ILC). Their goal is to empower interested patients, caregivers, clinicians, and researchers to join their efforts to educate others about ILC and support ILC research. Their webpage is a wealth of information specific to Lobular breast cancer particularly the resource…
Over at ABCDiagnosis, Jo has collected a ton of pertinent information around breast cancer and secondary breast cancer based on her own experiences. One of the huge problems she’s observed regarding lack of information for breast cancer patients, is the fact that many women, and even some GPs, are unaware of the red flag signs…
Announced earlier this month on the LBCA website, Dr Steffi Oesterreich was awarded a research grant for her work in Invasive Lobular Cancer, specifically around invasive lobular cancer metastases. Read more on the LBCA webpage: lobularbreastcancer.org
Lobular Ireland 