A combination of patient advocates, clinicians and scientists have come together to raise awareness of invasive lobular breast cancer.
Siobhan Freeney is a member of the Susan G Komen, Advocates in Science (AIS) Program and is also a member of the Irish Cancer Society PPI patient review panel. She has been networking with several Irish and International Breast Cancer organisations and research groups over the last few years including Breast Predict, Precision Oncology Ireland and is a patient advocate for IPPOSI.
Siobhán was Diagnosed with stage 3C ILC Breast Cancer in 2015. She had dose dense chemotherapy, mastectomy, auxiliary node clearance and radiotherapy in 2016. During treatment she became interested in Breast Cancer patient advocacy, specifically Invasive Lobular Breast Cancer .
“I would like to develop an effective ILC advocacy, to help raise awareness of the unique and complex aspects of invasive lobular breast cancer.”
Kirsty McGhie, BA (Hons) PG, MA. She is an Artist and Educator who has served on Arts council and Gallery panels in Scotland and Ireland. Her work explores the process of how to depict unconscious states and exchanges that affect the body. This has led her to look at how information is transmitted within organs, cells and neurons. Having been diagnosed with Invasive Lobular Breast Cancer she is interested in increasing awareness and understanding of this disease. She is a member of Patient voice in cancer research.
Ashley Coffey is a mother of two and a public sector employee. She was first diagnosed with lobular breast cancer in 2005. A new primary of ILC and IDC in 2014 and more recently an advanced local recurrence in June 2019.
Throughout multiple surgeries, chemotherapies, radiotherapy, brachytherapy and hormone treatments she has voiced awareness and vigilance through many print and social media outlets.
Marie Keating “out the other side” Irish Healthcare Award winning campaign featured Ashley with other survivors with stories of positivity. The installation was in St. Stephen’s Green, Dublin for the month of October and took pride place in Bloom. Ashley has featured and contributed to National Newspapers, Image Magazine and most recently the Centra campaign.
“In the search for answers we are forging relations with the Royal College of Surgeons in Ireland to get the lesser known breast cancer more research, more imagine and making the different characteristics known to all. Lobular breast cancer equates to 10-15% of breast cancers and has similar diagnostic rate to ovarian cancer yet, it remains illusive. “
Dr. Cathy Kelly
Consultant Medical Oncologist at the Mater Misericordiae University Hospital. Dr Kelly is Chair of Cancer Trials Ireland, Breast Cancer Clinical Trials Group and a Clinical Lecturer in University College Dublin.
Professor Darran O’Connor
Prof. Darran O’Connor is a cancer biologist at the Royal College of Surgeons in Ireland. https://www.rcsi.com/people/profile/darranoconnor
Dr. Tríona Ní Chonghaile
Dr. Ní Chonghaile is a cancer biologist and Lecturer in the Dept. of Physiology and Medical Physics at the Royal College of Surgeons in Ireland. https://www.rcsi.com/people/profile/tnichonghaile