Mid Summer Up Date #LivingWithLobular
I just want to highlight some of the ILC Advocacy work that I’ve been involved closely with this year so far as Patient Advocate with http://www.Lobularireland.com and http://www.elbcc.org A real highlight has been our association with…
Keep readingLobular Ireland
Another huge milestone for Lobular Ireland and European Lobular Breast Cancer Research and Advocacy Kudos to the Lead Authors for their personal time and commitment to getting this paper published. It’s an real honour to…
Keep readingInternational Lobular Breast Cancer Symposium 24th and 25th June 2021
Researchers, Clinicians, Patients, Patient Advocates, Scientists – Registration is open for #Lobular2021 For Registration and Program of Events http://ilcsymposium.com/ This year’s ILC Symposium has a stellar program of events for anyone interested in learning more…
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Patient Information Leaflet – from ELBCC – coming SOON!
We’re very excited to see the new Patient Information Leaflet be finalised. Here’s a sneak peak at what’s coming, it’s still in the final stages, but shouldn’t be more than a couple more weeks. Looking…
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Exciting NEWS!
ELBCC (European Lobular Breast Cancer Consortium) have been working away in the background with patent advocates and experts to put together an informative and timely Patient Information Leaflet on all things Lobular. It’s a nifty…
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Collaboration key to Breast Cancer research, with Darren O’Connor
Check out this video of Komen-funded researchers and patient advocates around the world to discuss the cutting edge projects they’re working on, but most importantly emphasising how key collaboration is. Darren O’Connor talks specifically about…
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LOBSTERPOT aims to better understand, diagnose & treat ILC
Ireland is among the 21 countries in the LOBSTERPOT in this exciting development to improve treatment and outcomes for patients diagnosed with ILC, and importantly acknowledgement that ILC needs specific treatment. European Lobular Breast Cancer…
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Flashback to Cancer Week 2020 – Breast Cancer Research Webinar
As part of Cancer Week Ireland 2020, the Irish Cancer Society held a number of very interesting discussions. Here’s a look back at one with a leading Irish Oncologist and Investigator with Clinical Trials Ireland.…
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LBCA Learning about Advocacy Webinar Series #1
Over on the Lobular Breast Cancer Alliance page, founder Leigh Pate presents the first in a series of Advocacy chats. While this is a US based group, the information is pertinent to all who have…
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Invasive Lobular BC Webinar – Recorded 30th Sept 2020
If you missed this webinar at the time, fear not, the recorded version of this webinar from Prof. Steffi Oesterreich is available to view now. A very informative talk. Tune in! Link here
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Lobular Breast Cancer Alliance (LBCA)
LBCA are a charity based organisation in the US dedicated to Invasive Lobular Breast Cancer (ILC). Their goal is to empower interested patients, caregivers, clinicians, and researchers to join their efforts to educate others about…
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After Breast Cancer Diagnosis – ABCDiagnosis
Over at ABCDiagnosis, Jo has collected a ton of pertinent information around breast cancer and secondary breast cancer based on her own experiences. One of the huge problems she’s observed regarding lack of information for…
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Dr. Steffi Oesterreich receives Metavivor grant to study ILC
Announced earlier this month on the LBCA website, Dr Steffi Oesterreich was awarded a research grant for her work in Invasive Lobular Cancer, specifically around invasive lobular cancer metastases. Read more on the LBCA webpage:…
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