Author: credmond2020

Patient Information Leaflet – from ELBCC – coming SOON!

We’re very excited to see the new Patient Information Leaflet be finalised. Here’s a sneak peak at what’s coming, it’s still in the final stages, but shouldn’t be more than a couple more weeks. Looking forward to sharing with you. Developing this leaflet has been driven by ELBCC (European Lobular Breast Cancer Consortium) with patent…

Exciting NEWS!

ELBCC (European Lobular Breast Cancer Consortium) have been working away in the background with patent advocates and experts to put together an informative and timely Patient Information Leaflet on all things Lobular. It’s a nifty few pages that summarise what you need to know about how Lobular differentiates, outlines the common treatment strategies and explains…

Collaboration key to Breast Cancer research, with Darren O’Connor

Check out this video of Komen-funded researchers and patient advocates around the world to discuss the cutting edge projects they’re working on, but most importantly emphasising how key collaboration is. Darren O’Connor talks specifically about lobular research. The interview is available to view here

LOBSTERPOT aims to better understand, diagnose & treat ILC

Ireland is among the 21 countries in the LOBSTERPOT in this exciting development to improve treatment and outcomes for patients diagnosed with ILC, and importantly acknowledgement that ILC needs specific treatment. European Lobular Breast Cancer Consortium (ELBCC)¬†with researchers based in UMC Utrecht, KU Leuven, and with 21 countries participating in this four year project, with…

Flashback to Cancer Week 2020 – Breast Cancer Research Webinar

As part of Cancer Week Ireland 2020, the Irish Cancer Society held a number of very interesting discussions. Here’s a look back at one with a leading Irish Oncologist and Investigator with Clinical Trials Ireland. We are extremely lucky to have Professor Cathy Kelly as our Clinical Advisor for Lobular Ireland Prof Cathy Kelly is…

LBCA Learning about Advocacy Webinar Series #1

Over on the Lobular Breast Cancer Alliance page, founder Leigh Pate presents the first in a series of Advocacy chats. While this is a US based group, the information is pertinent to all who have an interest in educating others about invasive lobular carcinoma (ILC) and advocate for ILC research. It’s a webinar recording lasting…

Lobular Breast Cancer Alliance (LBCA)

LBCA are a charity based organisation in the US dedicated to Invasive Lobular Breast Cancer (ILC). Their goal is to empower interested patients, caregivers, clinicians, and researchers to join their efforts to educate others about ILC and support ILC research. Their webpage is a wealth of information specific to Lobular breast cancer particularly the resource…

After Breast Cancer Diagnosis – ABCDiagnosis

Over at ABCDiagnosis, Jo has collected a ton of pertinent information around breast cancer and secondary breast cancer based on her own experiences. One of the huge problems she’s observed regarding lack of information for breast cancer patients, is the fact that many women, and even some GPs, are unaware of the red flag signs…