Living with Lobular

You’ve been Diagnosed with Invasive Lobular Breast Cancer.  You’ve had your Surgery, Chemotherapy, Radiotherapy and you’re taking hormone therapy.

Now what ?

You’re told ‘don’t worry’ you can now avail of an Annual Mammogram…..yes…. that’s the current line of reassurance regularly handed out to women after initial treatment for a Diagnosis of Lobular Breast Cancer. have designed a Template Letter to assist women who are very concerned that ‘Just A Mammogram is Not Enough’

You can download and print the PDF – fill in your details and personalise it to meet your needs.

The PDF is temporarily down as we are reworking it to appeal to a wider cross section  We’ll have it back up on line asap.

A new PDF Will be available here shortly

Key points and References ‘Studies have repeatedly shown that MRI is superior to conventional imaging, not only in terms of its increased sensitivity for detecting ILC, but also for the detection of ipsilateral and contralateral disease’
Johnson, K., Sarma, D. & Hwang, E.S. Lobular breast cancer series: imaging. Breast Cancer Res 17, 94 (2015).
‘The gain seems to be high, but also in women with a biopsy history of lobular carcinoma in situ’
Mann RM, Kuhl CK, Moy L. Contrast-enhanced MRI for breast cancer screening. J Magn Reson Imaging. 2019 Aug;50(2):377-390. Epub 2019 Jan 18. PMID: 30659696; PMCID: PMC6767440.
‘Mammograms are less sensitive for the detection of ILC than for invasive ductal carcinoma (IDC): up to 30% of ILCs are not visualized at mammography’
Porter AJ, Evans EB, Foxcroft LM, Simpson PT, Lakhani SR. Mammographic and ultrasound features of invasive lobular carcinoma of the breast. J Med Imaging Radiat Oncol 2014; 58: 1–10. doi:

Lobular Ireland are not medical professionals. We are a Patient led ILC Advocacy Group, who are involved with ILC Organisations and Researchers. We do not give medical advice. We strive to keep ILC patients and their Clinicians aware of up-to-date evidence based information about Lobular Breast Cancer.

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