Living with Lobular

You’ve been Diagnosed with Invasive Lobular Breast Cancer.  You’ve had your Surgery, Chemotherapy, Radiotherapy and you’re taking hormone therapy. Now what ? You’re told ‘don’t worry’ you can now avail of an Annual Mammogram…..yes…. that’s the current line of reassurance regularly handed out to women after initial treatment for a Diagnosis of Lobular Breast Cancer.…

Patient Advocacy Champion Award for Lobular Ireland

The Irish Cancer Society are delighted to announce that it has awarded Siobhán Freeney Round 1 of the Patient Advocate in Cancer Research Champion Awardees 2022. Siobhán Freeney http://www.LobularIreland.com is a patient advocate for Lobular Breast Cancer Research. After her delayed, late stage Invasive lobular breast cancer diagnosis, Siobhán found it incredibly difficult to find relevant…

International ELBCC ILC Symposium 2022

The International ILC Symposium 2022 was hosted in Utrecht the Nederlands this week, June 2022. The European Lobular Breast Cancer Consortium http://www.elbcc.org is supported by European Cost Action #CA19138 #Lobsterpot bringing together Scientific Experts from all ILC Breast Cancer disciplines, Clinical, Surgical, Oncology, Pathology, Histopathology, who collaborate and share their knowledge to promote further partnerships…

Survey on Research Goals and Priorities for Lobular

You are invited to participate in a survey focused on Invasive Lobular Breast Cancer (ILC)  which was developed by an international group of researchers, clinicians and breast cancer advocates. The survey was approved by the University of Pittsburgh IRB.  It will take approximately 10 mins to complete.  If you can please complete the survey no later April 30, 2022. Follow…

All About Lobular in Utrecht June 20 – 22

The City of Utrecht and The European Lobular Breast Cancer Consortium will play host to the 2022 International ELBCC Lobsterpot Lobular Breast Cancer Symposium and Summerschool Full Agenda can be found at this link https://ilcsymposium2022.com/ There will be a two hour Patient Advocate led Session on Tuesday 21st where we look forward to meeting, many…

The Lobmob Effect

Leigh Pate founded The LBCA – Lobular Breast Cancer Alliance along with Professor Steffi Oesterrich, Lori Petitti, Diane Mapes #Lobmob It’s a real success story for Lobular Breast Cancer and an extraordinary example of what a group of ordinary women achieved through collaborative efforts with ILC Researchers and a real, shared, passionate desire for change.Thank…

Lobular Translation across Europe

When I was Diagnosed with Lobular Breast Cancer, 6 years ago there was NO Lobular Specific information available to patients. That is now changed, Lobular Ireland and I are so proud to be a very small part in making this change. Not all #BreastCancer is the same, it’s so important to know this. Signs and…

Global Collaboration around Lobular Breast Cancer

Access to full article ✅ HERE How Researchers, Clinicians and Patient Advocates Can Accelerate Lobular Breast Cancer Research Lobular Ireland and founder Siobhán Freeney are extremely honoured to be named co author on this Paper and will continue to raise awareness and education around Invasive Lobular Breast Cancer in Ireland and across Europe. Simple Summary…

Lobular Breast Cancer – what is it?

Breast Cancers are not all the same! Invasive Lobular Breast Cancer is the 2nd most common type of Breast Cancer and it is 6th most common type of Cancer in women overall. It is not often spoken about openly and sometimes women do not understand just how different this type of Breast Cancer is. 15%…

Mid Summer Up Date #LivingWithLobular

I just want to highlight some of the ILC Advocacy work that I’ve been involved closely with this year so far as Patient Advocate with http://www.Lobularireland.com and http://www.elbcc.org A real highlight has been our association with the recently published paper How Researchers, Clinicians and Patient Advocates Can Accelerate Lobular Breast Cancer As founder member of Lobular Ireland…